Hi lemmy.world/c/autism,
We’re autistic and don’t believe in hierarchies. Here’s a 22-minute infodump on it: https://youtu.be/cuflpEQlFQk
This is your community, so we want this place to be your internet home, where you can be free to be your autistic true selves: share your interesting special interests, have meltdowns, be direct, expect others to be direct back, seek support for supposedly simple matters, make mistakes and receive compassionate feedback, be silly, and most importantly, feel included.
As moderators, we need your help. What do you want from the moderation team of /c/autism? Tell us freely. Don’t worry about upsetting us, saying the “wrong” thing, being “too much”, or whatever other unfair lessons we have been taught by society for being us. It’s okay. We get it. Talk to us so we can make this the best autism community we can make!
Some tips
Go to your favorite Lemmy communities, kbin magazines, subreddits, online forums, etc., see what you like about them, and then tell us to see if we can implement that here. Find what’s missing elsewhere that we could include here. Have discussions on our chat to brainstorm. Tell us more tips so we can add them to this list. Yours truly, The moderation team
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I like having either tags or posts that start with the brackets (eg: [venting]) so you know what the poster expects in terms of responses. Are they looking for help or just venting? Is it a meme or actual discussion around a piece of media? It just sets some clear expectations at the start so the threads can be what’s most helpful or productive / fun
Exactly! I have read discussions on how to implement here better upvote/downvote systems than reddit’s. While it may work, it will take time to experiment and evaluate different ratios (1:1, 5:1, or no downvotes, etc.)
Rather than changing the weights of each, classifying posts is a cleaner way to manage and orient a meaningful discussion from the get-go.
ETA: As tags seem to not be a thing in the near future, what would be relevant classifiers for the community? Based on your comment and the activity I’ve seen here, these would make the cut: Vent, Help, Meme, Discussion, and Infodump
That’s a great suggestion! Right now, we do not have that capability. I created a post on !support@lemmy.world asking the admin if this is something that might be option eventually. You can see the post here.
Edit: So, it doesn’t seem like the admins are working on it because they’re focused on absorbing the growth (link). However, since Lemmy is open-source, if someone were to create it, then we could discuss implementing it. Any takers?
Any takers?
Alright, I just needed a light push to learn Rust.
Hyperfixation give me strength!
I knew this would happen! Let us know if the community can help
- Restrict promotions to a megathread or restrict them overall.
- If a resources page is made for regional services, specify if it is US-exclusive and prioritise the inclusion of non-US services.
- Enforce moderation against harassment towards a person using different terminology to refer to themselves (e.g. an autistic person refers to themselves as “a person with autism”).
- Ensure the Matrix space is moderated as well as the Lemmy community.
[1] Advertisments are against our rules 2 and 4
[2] We have a Helpful resources post that is curated by our other moderator BackOnMyBS
[3] Im not sure what you mean here please elaborate
[4] The Matrix space is checked by me every day
[2] We have a Helpful resources post that is curated by our other moderator BackOnMyBS
I have taken a look at that and most of the resources are not location-specific except for the inclusion of the Asperger/Autism Network (AANE), which only provides services to the United States. This should be clearly stated as this is a global community and many people aren’t from the United States. Most online communities assume and default to an audience exclusive to the United States (referred to as US-centrism, US-defaultism or Americentrism).
[3] Im not sure what you mean here please elaborate
I elaborated on it in a recent post which you have commented on but to summarise my point, people should be able to use the terminology they want to refer to themselves without people trying to “correct” their language or harass them. I find that this behaviour goes under the radar because it is done with good intentions but I think it is harmful to the community.
[4] The Matrix space is checked by me every day
I’ll message you about this one.
Sorry to poke my head in here, but if you could point me in the direction on how to communicate better with my 16yo son who is “high functioning?” On the spectrum? He’s into “gangsta lifestyle?” But anyways there’s too much to unpack. I support him and love him, and I think he knows it but I’d like to be able to help him more. All the ? Marks are because I’m not sure of the terms or if they offend, I’m just trying to ask for help. Thank you
It might be more helpful to make an original post to get more eyes on it. Let us know if you would like help on how to create a new post!
r/autism sub is very ableist towards high support needs people, maybe don’t do that.
What are community rules on functioning labels, level of autism, and severity of autism?
I’m in a support group on Facebook that doesn’t permit the use of these and it works very well. High and low support needs is what is used when applicable.
Labels and levels are problematic I think. It isn’t a linear spectrum, some of us don’t “have” autism worse or more than others, we’re all just autistic, it is who we are not what we are.
Autism is not a linear spectrum such things are extremely ableist.
That was my point
Let’s not gatekeep terminology.
Sorry, just thought I’d suggest it. We don’t use levels or severity in the UK, and we don’t diagnose functioning labels anymore. You’re diagnosed as autistic and that’s it. The support group I’m in reflects this and it is the most supportive and accepting place I’ve been online. I thought it’d be nice to spread that.
@guriinii @A_Chilean_Cyborg In most of the autistic online communities I’ve been in, the consensus seems to be that each person gets to choose how they describe their autism. I personally prefer using “low support needs” rather than"high functioning" or “level 1” to describe my autism, because that best describes my day-to-day life. But I also try to respect those who use levels or functioning labels to describe their autism, because they know their experiences better than I do.
some of us don’t “have” autism worse or more than others
The DSM-V diagnostic levels, which are the only type of “functioning labels” I accept alongside whatever the ICD-11 equivalent is, only indicate the amount of support someone needs. People may require more support than others or have more debilitating presentations of symptoms and there is nothing wrong with that. So I would argue that people can have “worse” autism than others.
r and c chile(@feddit.cl) has a weekly random megathread that is trully one of the best places on the internet in my opinion.
Can we have a weekly random megathread as well?
could you describe what it is? im not familiar with the concept of a megathread
is a big thread for discussion of random topics, a chat.
For that we have a matrix chat: https://lemmy.world/post/161636 (its an alternative to discord)
