I had been working really hard to plan my medical leave but whoops I couldn’t stop crying last night so I decided I probably shouldn’t go to work today so I guess it’s starting early.
I have been working with an Occupational Therapist to help plan accommodations for my return, but other than that…what do I do lol?
I would very much like to speed run 100% this thing and while I know it’s not possible I’m probably going to try anyways 🤷♀️
If you’ve been on leave for autistic burnout I’d love to hear:
- What did you do with your time off?
- How did you know you were better?
- What do you wish someone told you about it?
Appreciate any replies, thanks!
Dude. Don’t spend run this. I tried, and I made things much much worse. No job and no motivation to do anything.
Be careful.
Thank you, I was being a bit silly there. I understand I can’t do that. I hope you can recover.
Good luck on your journey!
silence. it can be overwhelming at first, but embrace it and everything will fall into place again.
listen to your heart, it will tell you what to do and what not to.
be honest with yourself
don’t be afraid of change but also plan ahead.
find yourself in nature. watch the sunsets and sunrises, the moon. watch the plants grow, listen to the animals around you, the seasons come and go. it’s soothing. learn about your own cycles in life, when your battery is high or low. and embrace it.
you are not alone.
there’s more to life than what society wants you to think.
burnout is there for a reason.
i love this cheesy line i found ages ago, somewhere on the web, but I keep coming back to it when i’m feeling low; you are where you need to be. just breathe.
Thank you, I crave silence so letting myself experience it isn’t an issue. Nor going against what society wants from me.
I had the severe burn out that happens when you ignore the root cause and keep trying to push through it until you’re incapacitated by what can effectively be described as a brain injury.
My burn out left me feeling concussed for months. I lost a lot in that condition and I was forced to take medical leave from work that eventually became permanent. Fortunately, I was able to recover and rebuild myself into a, mentally, much healthier person.
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Not a lot. I would lay in bed for half of the day, listening to the various aircraft fly over my home. I got to know their routines. I made the mistake of spending time online, and that delayed my recovery I’m sure of it. At the time… Reddit, Youtube, Netflix, gaming… all that stuff got in the way.
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I was only able to convince someone that I was well enough to start a new job after 5 months of trying to heal. To be honest, it was closer to a year before I was really actually functioning alright, but I was down to the last few hundred dollars of savings that I had left and had to work or would have lost my truck and home. In a way I think I’m still recovering several years later (in a good way), but I knew I was better once I felt like I wasn’t trapped by the same old problems that led me to burn out in the first place… and that came a while after I was ‘functional’ and capable of working again.
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Brain rest is what will heal you. Scrolling socials is not brain rest, its brain work consuming (mostly) garbage information. Watching shows or videos is not brain rest. Gaming is not brain rest. If you do these things, set very short and strict limits on it. If you can manage to not do them, that will help a lot. Brain rest is meditation. Brain rest is cleaning your home and keeping you hygiene up. Brain rest is reading a book. It’s a light hobby, like drawing or tending to plants. It’s writing in a journal by hand. Get exercise, it will speed up healing.
Meditation, once you get the hang of it, is like bathing your brain in cool cucumber water. It is a skill you can learn to protect yourself from burnout in the future.
Thank you!
I don’t think it will be too hard to limit screen time to much less than when I was working. I can’t even look at my home computer right now and while I am typing this on my phone, I have limited capacity to look at a screen. Good to know that is something I should try and keep up.
I have a giant garden that needs a lot of work I’m hoping to spend tonnes of time out there tidying up once I can peel myself from the couch. I am also hoping to spend time with pottery.
Those sound like healing activities :)
I broke the phone habit in a couple of ways, if it helps you to hear:
First was to stop using apps when a mobile format website existed. It makes it more inconvenient to use, which is what you want in this case, so you get annoyed and disengage.
Second, you can use the content filter to custom block the sites like Lemmy that might be part of your habitual phone use that happens whn you’re bored. You want to use that boredom feeling as a signal to do one of the more productive activities instead. If you have iPhone, try turning the adult filter on then add a custom domain “crazypeople.online”
Third is to decide on some time to power it off and put it away out of sight. No notifications or text messages to check if the phone is off. I’ve got a spot in the laundry room that I leave my phone powered down. I continued these practices after recovering, and tomorrow I will still power off my phone and put it away. You don’t want that thing’s psychological hooks pressing your buttons even once you’re healthy again.
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I love/hate how all the top comments are kinda like “I took a long break and focused on my self.”
I have kids and a spouse. I’ve the most earning potential. There is no break for me.
I hate that for you.
I have very generous short term disability coverage at work, which is the only reason I am able to even think about this.
I get that and have been there. The worst kind of burnout will still force you down and out irrespective of your priorities and obligations. Take care of your self.
Mostly I just want day(s) with no plans or demands. Maybe one simple thing at most. Sleep when I want. Watch a movie or do anything the mood strikes me to do. Sleep again. Whatever.
I know I’m better whe I don’t dread needing to go grocery shopping because I’m out of something.
Thank you. It’s been like 3 hours and I’m so bored lol.
Then do whatever you feel like. It’s not about doing nothing. It’s about doing whatever you feel in the moment. Not NEEDING to do something you don’t want to.
Ah but when I run out of anxiety momentum, I can’t tell what I feel like doing.
So I end up wasting it by scrolling through the infinite options.That’s a perfectly reasonable activity.
Shopping for what you want to do.
I’m still recovering, and at the moment going through another stressful period that I try to manage as well as I can, so it won’t completely wreck me.
I realized I need to start changing the way I think and react emotionally to be able to recover (cptsd-related), so I found a couple resources, youtube therapists and podcasts that I’d learn from. I also found it useful to understand more about zen and philosophy behind mindfulness (I’m allergic to superficial “quick fixes”, I need to understand WHY things are supposed to work and what lead to developing the practice). Basically learning how to recognize and listen to my personal needs, what cues the body gives, where stress and anxiety gets “stored” in my body and so on. I realized I wasn’t able to stop and that’s what I really needed to do. I’m used to just forcing myself to do what I think I’m expected to, completely ignoring what’s actually good for me. Plenty of shame and fear to tackle.
I decided I need to do at least light physical activity every day, so I started taking “mental health evening walks” and observing nature while at it. I like to listen to these therapists’ podcasts while I’m walking to calm myself and minimize hearing traffic noise.
All in all learning about my sensory needs and minimizing sensory stress has been important. Also realizing what kind of social situations drain me and being conscious about how much I can take. It’s painful to have to give up on good and enjoyable things because they too drain me.
Then I started exploring what kind of social activities I’d enjoy and tried going to some groups. Peer support has been especially important!
Half a year later I became curious about possible study opportunities and got into one course. Being in a structured (social) setting where I could learn from interesting topics helped me a lot!
For me the most obvious signs that I’m getting better are: less sensory stress, less emotional dysregulation, more battery for social things and not feeling exhausted all the time. The progress is slow though and I think I’m just in the beginning about learning what’s good for me and balancing my life so that it supports my needs.
Thank you!
I know the root of my burnout is communication challenges and I am working with an occupational therapist to find accommodations that will help. My work is inherently stressful (large infrastructure projects) but what makes it unbearable for me is when directions change or decisions change and I seem to be the only one who doesn’t understand it. Or when people refuse to answer my questions as a way of telling me they don’t need something anymore.
I am also unable to stop (I ran one marathon once and didn’t notice that I was bleeding though my shoe good times lol). I’m going to have to build in rules or routines that force me to stop because I don’t know if I will ever learn my body cues. I’ve done quite a lot of meditation and yoga and love hanging out in float tanks/isolation pods but those just help me dissociate more lol.
Good that you are getting help from a therapist!
Changes are stressful and they are especially stressful when there’s vagueness/unclear communication around it! That also sounds a lot like an internal communication issue in the workplace, not “just a personal fault” - and those things should be taken seriously.
We neurodivergents learn from childhood to ignore our needs and it takes a long time to relearn to trust ourselves and hear the cues our bodies and minds give to us. It sounds like you are already doing a lot, taking steps and finding new, healthier ways of being. Hopefully your workplace will also find ways to help out in that professional setting!
My post was very much a tl;dr - it’s been like 7 years since I started realizing something was wrong at work. I upped and left a really good job for something simpler, somehow ended up in the same role a year later (LMAO) but somewhere that made me yearn for the problems of the previous job. ADHD “diagnosis” 3 years ago (GP gave me meds), autism/ADHD diagnosis via assessment process last year.
Vaugeness was less of an issue at the old job because roles and responsibilities were more clearly defined. Here they are not, and the scope of my responsibility is so much more.
Just mentioning that it’s been a hell of a journey, mostly so others who read it won’t beat themselves up for taking long to figure it out.
Last time I took a mental health sick leave was for three months after a breakup. Back then I moved into my parent’s in-law suite and basically just tried having one single task on my todo list at a time. Wether that was dishes, making my bed or showering. (This excluded taking care of my cat as she didn’t sign up to be neglected) I mostly worked on 3D modeling projects at the time and worked through the process of buying a sailboat to live on. The biggest help for me was being able to get “old people meals” from the local small grocery store and having.
These days I haven’t needed to take time off because I pre-emptively sail to a remote anchorage for a week or two and separate myself from being able to run errands or be available for people except the once that help me recover (they bring me food and cuddles :3). No neighbours, no noises that aren’t me (except the screaming kitty) Only me in my lil solar powered spaceship taking naps until I slowly start being able to do the tasks I wanna do.
I know I’m doing better when I start just naturally cleaning up the counters, working on lil projects and my brain doesn’t need 2-3 naps a day. For my sick leave I was starting to look forward to working on my work projects by the third month. Oh and the emotional disregulation started fading lol
But yeah, sleep and reducing demands (including even just the POSSIBILITY of doing things) is key for me.
Thank you! I used to go back country camping by myself or go to those flotation pods when I wanted to be alone. Maybe I should do some of that.
Im not sure what autistic burnout but sometimes I feel like I have never really recovered from burnout. Way back in high school I was really burning it with ap classes and such and when I went to college I started strong but felt like I was falling a bit every semester. Like first semester college was A+ across the board but it kinda went down each semester. so semster two was like A and first sophmore was A- then B+ Then B then B- then C+ and C and here is the kicker I went five years to pick up a second major so like c- and D+ at the end. I like barely escaped with a decent gpa. Then I went into a PhD program which leaned heavily on my GRE score and ended up leaving that within a year (not totally burnout as a close family friend died and was very disillusioned with the path). I worked in the industry for a few years and I think recovered a bit from burnout and then moved into IT with a few certs and worked at a really interesting place but was kinda even burning out there despite how neat it was. That was like a decade though. then went into standard corpo type of work and was kinda excited to get good pay but oh man the first place was in finance and moved to the e-commerce which felt a bit better although I did wonder about data sharing type stuff and felt a bit less burnt out. Then I moved to insurance which was not bad when you look at insurance in the ideal and since we were providing services to companies I did not have to worry about the particular company dealing dirty. Still long years in the industry and as I said it never really feels like the burnout goes completely away. I have been unemployed for almost two years but that does not help as looking for work is stressfull and depressing.
That sounds tough.
i was on a leave of absence from college for a year and i focused on therapy, rest and hobbies - basically things i couldn’t do while i was studying. i tried to reduce my stress levels as much as possible, get good sleep, and also focused on learning how to cope with stress in therapy and eventually i felt i’d gotten to a good enough place where i could go back to school. so i completed a semester but then had to take another leave of absence because of health problems (got diagnosed with a connective tissue disorder and autoimmune disease) and that’s where we are now 🥲
it was something i was thinking about for a while but because my family disapproved i tried to hold it out as long as i could. one day i just had a panic attack after an exam and broke down. that’s when i realised i needed to stop and repair myself or my body would just forcefully schedule one for me haha.
don’t feel bad about having to do this, it’s important and necessary for your health and wellbeing. i hope your leave is restful and healing!
I wanted to add that it’s maybe a blessing in disguise that you figured this out so young. I was hospitalized as a tween and in my 20s and it was brushed off. I guess I skipped the mental breakdown in my 30s and made it to my 40s. I wonder how much easier life could have been if I had known about the neurodivergence when I was younger.
I’m sorry you are struggling and I hope you find a way to manage your illnesses. I def learned pushing myself from my family and also living with food and housing insecurity. It’s hard to unlearn, but we’ll get there :)
Thank you!
I took over a small forum on the Internet and now run it like a mad dictator to relieve stress.
Thank you lol. This is a wonderful space (Even if it’s not the forum you are talking about)
It is.








