• PhobosAnomaly@feddit.uk
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    6 months ago

    Is it me that finds it weird signing off her own tweets with her name, when her username is literally right there?

    It’s just a shame the (presumably US-based) healthcare system is a clusterfuck, because that bit of expensive paper with a diagnosis on it would likely open up a whole host of avenues for exploration of the condition.

    • Mongostein@lemmy.ca
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      6 months ago

      I don’t use Twitter, but if people read tweets the way I do, I never even look at the username unless I’m trying to figure out if it’s the same person replying to another.

    • DessertStorms@lemmy.blahaj.zone
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      6 months ago

      It’s just a shame the (presumably US-based) healthcare system is a clusterfuck,

      Laughs in disembowelled NHS…

      When the government controlling the public health service doesn’t give a shit about the actual public, especially those who it sees as “burdens”, you get more or less the same shit as if it didn’t exist at all.

      I was on a waiting list for 2 years to get an autism diagnosis, and the only way around this is to go private and pay an absolute fortune (this is of course by design - deprive the NHS of its specialists in favour of for profit private clinics).

      Want therapy? Wait at least 8 months. Honest about being suicidal? No need to wait that long, here are some cops to come and take you away…

      My point is the op is correct no matter where you are in the world, and people who insist that self diagnosis isn’t valid seriously need to check their privilege.

      • StoneyDcrew@lemmy.world
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        6 months ago

        I partly agree with you, but not completely. There are benefits to claiming you are ADHD, like in the UK being covered as a disability, thus employers are required to make reasonable adjustments for work comfort e.g. Noise cancelling headphones.

        People without ADHD that claim to be can shew the expectations of what ADHD people go through in the wrong direction.

        That said: I ended up waiting like 3 years for my diagnosis (and I had to chase those bastards every single time for a response), so if my employer didn’t trust me and wasn’t understanding of my struggles I would have been sacked by now.

        That said; needing to pay £1,000s to get essential mental health care is outrageous. I’d take a reasonable self-assessment any day over expecting people to pay that.

        But I wish people would stop voting for the government party that trying to convince them that immigrants are stealing jobs and they should underfund health care to keep the economy safe.

        • DessertStorms@lemmy.blahaj.zone
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          6 months ago

          People without ADHD that claim to be can shew the expectations of what ADHD people go through in the wrong direction.

          This is a fiction used to deprive all of us of services and accommodation (by making it ever harder to pass the gatekeeping).

          Neurodiverse people are generally treated like crap in the work place and generally in society, the idea that people are making it up to gain some imaginary perks truly is ridiculous to anyone who has ever tried getting any support. You having a decent boss is one of those privileges I mentioned that you should check, because as you go on to say, if that wasn’t the case, and it isn’t for many, you’d be sacked, as many are, if they ever get employed in the first place.

          As for voting, you basically describing both parties at this point, and that’s because the whole system is a sham, as is the idea that voting actually gives us any say or control. It’s only by looking outside of the bucket they have us in that we will find the way to freedom.

  • noredcandy@lemmy.world
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    6 months ago

    On one hand, sure just a meme. On the other, it may not be ADHD that’s causing these symptoms and getting a professional diagnosis will help with treatment regardless of what’s going on.

    • Prandom_returns@lemm.ee
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      6 months ago

      Unless it’s actually detected with some sort of brain scanner, it’s all questions / answers.

      For example, I don’t want to get an official diagnosis, because I don’t want it in my medical records, becaus it might impede things, such as getting a driving licence.

      Many doctors where I’m from, tried trearing ADHD with antidepressants. Which is like the exact opposite of what’s needed.

      Yes, I’m from a weird place.

  • Monument@lemmy.sdf.org
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    6 months ago

    Man. I hate to shill, but…

    I faced many of those same issues, and after a year and a half of failing to set up testing, my doctor told me to go to adhdonline.com - they offer online testing for $180, and give you results back in like a week. She’d already given me an ADHD testing referral, and she suggested that my insurer would probably reimburse me for the cost, but I have ADHD, so I never bothered with it.

    It took me about 4 hours to do the test (but I did it while I was sitting through a day-long virtual meeting where I had to be present, but not ‘present’. So like, it probably won’t take focused people that long.)

    And - yeah. Morally, it sucks. It’s feeding into the commodification of someone’s job and is morally kind of like using Uber or AirBNB. It’s convenient and maybe cheaper. Maybe it upsets a system that could use a little upsetting, but will likely upset it too much and have unforeseen impacts.
    But it worked for me.

    • whoisearth@lemmy.ca
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      6 months ago

      Self-diagnosis doesn’t help with relationships IMHO either and I mean that both from a personal and professional perspective.

      Why you might ask?

      YMMV but for me, I am an open book. Having the diagnosis meant I could talk to bosses when trying a new med, or explain to them when struggling. Knowing the diagnosis means you immediately diffuse an aspect of a challenge. For me, that has been immensely valuable.

      Edit - wanted to add a common counterpoint is don’t let work know because you can’t predict people who will use your honesty against you. I will argue assholes are assholes and you can’t live your life at the possibility someone will be a dick. Most people are good people. Trust on that.

  • MehBlah@lemmy.world
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    6 months ago

    I self diagnosed fifteen years ago but in the last two years I’ve been getting real help for it. I regret not doing so when I first came the conclusion I have ADHD. I can’t take stimulants and the first time I was given a non stimulant ADHD drug I had a severe reaction. This caused me to avoid getting real treatment and that was a huge mistake.

  • recklessengagement@lemmy.world
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    6 months ago

    Considering how much medication can help, uh, yeah, do those things. Its a trivial inconvenience compared to living unmedicated.

    Also 5k is a lot, maybe if you’re uninsured? Hell, getting an uninsured MRI is cheaper than that. And health insurance is kind of a must for living with a disability.

    Don’t like sentiments like this. I feel like it prevents people from getting the help they need.

    • db0@lemmy.dbzer0.comOPM
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      6 months ago

      The author is not saying don’t get self-diagnosed. They’re criticizing the healthcare system.

    • TimewornTraveler@lemm.ee
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      6 months ago

      a lot of stuff about childhood experiences. it’s helpful to have someone present who knew you as a child, but failing that, you can talk to them beforehand I suppose. I imagine this sounds like a headache, so don’t worry about calling mom if it sounds stressful or confrontational. id say the ideal is a teacher who knew you well but doesn’t have stakes in the diagnostic label like a parent might. maybe a sibling.

      • Eyck_of_denesle@lemmy.zip
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        6 months ago

        Hi my parents took me to a psychiatric but did not say anything about adhd. I did not know what the process was, so I didn’t ask them for that diagnosis. They did give me anti depressants but I stopped going after 3 sessions cause i didn’t feel like it was going anywhere. Do you think i should go back and ask for a diagnosis? I also want to add that i live in a country where mental illness is still not real. So im not surprised the doctor was not communicating with me openly

        • TimewornTraveler@lemm.ee
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          6 months ago

          that sounds hard. i cant give you medical advice - you know yourself better than me anyway. one thing i can comment on is that changes usually take a combination of medication and behavioral changes (aka therapy). so it’s not surprising that things didn’t improve after 3 sessions. it takes a lot of effort!

  • Father_Redbeard@lemmy.ml
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    6 months ago

    Are people having that many hurdles for official diagnosis? Genuinely asking. Mine was with my primary care doc, $100 out of pocket for the visit, and whatever the meds cost. There was one questionnaire and total took about 30min from start of visit to prescription. That said, first meds aren’t helping at all so I’ll need to go back and see what other options there are, if any.

    • yuri@pawb.social
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      6 months ago

      Folks, really seriously genuinely, talk to your regular ass doctor about a diagnosis if you’re looking to get assessed. Mine just gave me the assessment for no charge because I was already there for something else.

      He even said if I wasn’t happy with the results he would write me a referral to whoever and just send it to my insurance like a specialist referral, so they’d at least HELP even if it’s out of network.

      • kerf@lemmy.world
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        6 months ago

        After waiting several weeks for my appointment my “regular ass doctor” told me I couldn’t have adhd because I could look him in the eyes and hold a conversation. So, thanks, I’m cured?